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Many charities and organisations produce resources about dementia in people with an intellectual disability. Below is a list of some resources which are available online.
British institute of Learning disabilities
The British institute of Learning disabilities (bild) produce two easy-read factsheets about dementia. Available as PDFs from:
Factsheet one: "What is dementia?"
Covers who can get dementia, diagnosis, treatment, and how to reduce risk.
Factsheet two: "Supporting a person with dementia"
Covers living with dementia, communication, staying active and behaviour.
Down's Syndrome Association
Webpage resource for carers of people with Down syndrome and dementia:
Alzheimer's Society
Section of webpages about dementia in people with learning disabilities, aimed at carers:
Factsheet for carers called "Learning disabilities and dementia" (available as PDF or hardcopy):
Shared Lives
Webpage/PDF resource aimed at carers called "Growing older with learning disabilities":
National Down Syndrome Society (NDSS)
American webpage resource for carers called "Alzheimer's Disease & Down Syndrome":
NDSS also produce a PDF booklet about general ageing in people with Down syndrome, which contains some information on dementia and care:
NDSS have also produced a YouTube video for carers and services about supporting individuals with an intellectual disability and dementia:
Alzheimer's Disease International
American webpage/PDF resource for carers called "Dementia and Intellectual Disabilities":
British Psychological Society and Royal College of Psychiatrists
PDF called "Dementia and People with Intellectual Disabilities: Guidance on the assessment, diagnosis, interventions and support of people with intellectual disabilities who develop dementia", aimed at people working in clinical and social care services:
