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The Impact of Epilepsy on Arranged Matrimony in India. A Descriptive Study and Formulation of Recommendations

This project, led by Prof John Duncan (UCL Institute of Neurology) and Dr Caroline Selai (UCL Institute of Neurology), along with Prof Gagandeep Singh (Dayanand Medical College) and Prof Michael Jennings (SOAS Department of Development Studies) was a partnership with two other universities and policymakers in India.Ìý

An estimated 12 million people with epilepsy live in India, but for many people, misconceptions, cultural beliefs and negative stereotypes surround the condition, which can result in epilepsy patients encountering barriers to education, discrimination and social stigma. This adds to the barriers faced by individuals with disabilities and lifelong medical conditions in accessing care and treatment. The majority of weddings in India are arranged, and until recently, an epilepsy diagnosis would be considered grounds to invalidate or prevent a marriage. Ìý

Epilepsy is often concealed during marriage negotiations, and this can lead to profound marital discord, and high rates of divorce, ill health and potentially poor seizure control, more so among women with epilepsy. Ìý

With support from the UCL Grand Challenge of Global Health, the project team explored attitudes towards people with epilepsy, and how healthcare professionals and policymakers can work to reduce stigma towards people with epilepsy. It is essential to empower individuals with epilepsy, especially women, and to collaborate with policymakers to address and challenge the stigma associated with the condition. As a result of the project, the team have formed a partnership with the Indian Council of Medical Research, to support them in developing a mitigation strategy which will promote improved health outcomes and greater public understanding of the condition.Ìý

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