Resources for patients
Researchers at the LMCB are studying a number of severe disorders. They actively engage with patient and family groups in their research in many different ways, including:
- consultation
- collaboration
- sharing recent discoveries
- providing expertise to patient organisations
Ìý
Resources for Batten Disease:
Ìý- gateway for clinicians, families, researchers interested in Batten disease.Ìý- European project focused on developing treatments for Batten disease. - charity that aims to support families, raise awareness and faciliate research into Batten disease.
Ìý
Ìý
Ìý
Resources for Von Willebrand Disease:
Ìý
Resources for platelet storage disorders:
Ìý
Bleading disease support:
Ìý